Update in Heart Magazine

12 months ago we shared our story in Heart Magazine and we have a short update in the latest copy on page 9, here's a quick photo of the page and a  link to the whole magazine, have a read!

http://fulwoodfmc.net/2015/05/heart-magazine-summer-2015-planting-potential/

Since the last blog post here's the latest -

Reuben had his latest operation at the end of March on his spine (he has operations every 6 months as he grows) He's fully recovered now, all healed and back to normal and everything looks good so far :) This was Reuben's 5th operation and he will have about another 16 over the next 8 years or so.

Reuben has finally caught chicken pox! Thankfully it was just at the right time, we had avoided him being in contact with it while he was in hospital every 10 weeks for the spinal casting as it could have put his treatment back but he caught it a few weeks after his last operation so everything worked out well and he's been great with it! Only a few spots, dosed up on Piriton and he's hardly noticed he's even had it!

 

A recent picture of Daddy, Esther and Reuben - a nice sunny day at the park :)

 

 

Our ICE cards arrived (In Case of Emergency) these are a great idea, if we're in an accident for example I carry a card with Reuben's medical details on alerting people to his conditions and he carries one on a keychain, there are stickers for the car so that emergency services know we have ice cards on us and they will know what to do. There are different ICE cards available for different conditions, epilepsy, diabetes etc for children or adults, I think they're a great idea, search for them on Google if you want to have a look.

 



Reuben is still at school for mornings and home in the afternoons where we do reading and other activities, often number based! He loves to learn maths and French but enjoys lots of other things too :) We have a team meeting in June with all the people involved in Reuben's care, Speech and language, occupational therapist, educational psychologist, teachers etc and we will talk about what we have been doing recently, and the next steps forward and planning for the next school year.

 

Cheeky boy pinched the best seat in the garden :) Reuben still has those long eyelashes!