And now I am finding it difficult to know what and how to write here, I am not great with words, I'm not eloquent and can't express things easily to say how I feel to summarise the past 2 years. 2 years ago as I sat by the incubator in hospital looking at wires and machines I thought once we were able to bring Reuben home he would be ok and everything would be 'normal' etc.
Since then it has been always looking to the next appointment, sometimes up to 5 in the same week, doctors, nurses, paediatricians, neurology, urology, physio, occupational therapy, portage, health visitors, midwives, hospitals clinics and appointments have ruled and dictated our diaries and our phone bills.
In a way I feel sad that we have somehow been robbed of the baby stage, we haven't been able to do a lot of the things that babies like to do, swimming, different toddler groups etc but we know that one day it will all be worth it to see him walk straight upright and maybe even to use a knife and fork.
We could be asking why, we could be questioning why Reuben isn't like his brother and sister but that's where faith comes in. Before he was born God knew how he was going to be and chose us to be his parents. I never thought I would be able to cope with a child with so many different needs which change all the time but God gives us the strength and faith to entrust him to His plan. Of course we have prayed for instant complete healing at every opportunity but just because he is taking time it doesn't mean our prayers aren't being answered. People ask how we cope - especially when Reuben is up every hour in the night and needs care or pain relief etc, and it's not our own strength we rely on, we simply could not do this by ourselves. We know that it is by prayer and faith in God that we can love each day whatever we are doing.
Maybe you are reading this not knowing who we are, or you've seen a link on facebook or something and wanted to know more about Reuben's conditions. Maybe you're reading this and have never thought about what it means to have a faith, maybe you have a stereotypical view that Christianity is dull or boring, whichever it is I'd be happy to share our experiences and answer any questions you may have about either. Please do get in touch
So this year, Reuben's 2nd year, the infamous terrible 2's come and get us - we can't wait! We want to enjoy every second because it goes so quickly!
Happy birthday to our wonderfully happy handsome little man, our little superhero, we love you so very very much xxxx
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